Planning a future for our intellectually disabled, epileptic, special, autistic, handicapped, beautiful son. Because the labels don’t matter – but he does.
As the parents of Mikyla (born with Cri-du-chat Syndrome) we had always imagined her having a life away from us – her family.
Looking for supported accommodation for Kathryn was not an easy task. I was taken out to see many homes with most of them being old and small and places I could not see my daughter living in.
Our family life had always centred on Jake’s care, wellbeing and happiness. Then suddenly I felt at risk of not being able to provide for all of my family (including Jake) in the ways they needed me.